The Health Research Board (HRB) website defines Public and Patient Involvement (PPI) as follows: 

By 'public' we mean everyone in Ireland who has an interest in health and social care as a public service, including potential users of services. By 'patient' we mean people who use services such as patients, service users, clients or their carers. By 'involvement' we mean the active involvement between people who use services, carers, the general public and researchers. It does not include the use of people as participants in research (or as research 'subjects') and does not provide data for individual research projects.

PPI is very important to us, to ensure views, needs and interests of those affected by our research are heard and considered in how we design, perform, and report our research. Contact us to learn more about PPI or to get involved.

Recent and Upcoming Events

21 May 2024

Join us for HD Awareness Day at Trinity College Dublin, a day of talks from researchers and clinicians in Huntington's Disease. Sign up here https://forms.gle/etreEi3wNwtQNnL59

21 June 2023

IMNDA and TCD event for MND Global Awareness Day

Past Events and Webinars


TMS-Based Research of Huntington's Disease


Dr Roisin McMackin Talks about her Research